Canadian Bleeding Disorders Registry Mobile Application

MyCBDR is a cutting-edge mobile application designed specifically for individuals living with bleeding disorders, as well as their parents or caregivers. This secure and user-friendly platform serves as an essential tool to manage and document home treatments effectively. Whether you're managing hemophilia, von Willebrand disease, or other inherited bleeding disorders, MyCBDR offers a comprehensive solution tailored to meet your unique needs.

At its core, MyCBDR is an online system that streamlines the process of recording bleeds and treatments in a quick, easy, and reliable manner. The app empowers users to take control of their healthcare by providing tools to log every detail of their treatment journey. From documenting when a bleed occurs to tracking the administration of clotting factor concentrates, MyCBDR ensures that nothing is overlooked. Additionally, the app allows users to manage their inventory of treatment products, ensuring they always have enough supplies on hand to handle any situation. This feature is particularly valuable for those who rely on regular infusions at home.

Another key advantage of MyCBDR is its ability to seamlessly send recorded data directly to your Hemophilia Treatment Center (HTC). By automating this process, the app reduces administrative burdens and enhances communication between patients and healthcare providers. This ensures that your HTC has up-to-date information about your health status, enabling them to offer more personalized care and support. Furthermore, MyCBDR enables users to update their contact and personal details effortlessly, keeping their profiles current and accurate.

Beyond its functional capabilities, MyCBDR prioritizes security and privacy. It adheres to stringent data protection standards, ensuring that all sensitive information remains confidential and secure. This commitment to privacy gives users peace of mind as they navigate their healthcare journey. Whether you're newly diagnosed or have been managing a bleeding disorder for years, MyCBDR is a reliable companion that simplifies the complexities of daily life while fostering better communication with your healthcare team.

In summary, MyCBDR is more than just an app—it's a lifeline for individuals and families affected by bleeding disorders. By offering a centralized platform to record treatments, manage supplies, and communicate with HTCs, MyCBDR empowers users to take charge of their health like never before. Its intuitive design, robust features, and unwavering focus on security make it an indispensable tool for anyone seeking to optimize their treatment experience.